We connect, educate, and empower the X-linked hypophosphatemia community of care. Welcome!

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News from the community

Honoring those battling rare disease

Rare Disease Day 2021 is on Sunday, Feb. 28. As we celebrate the global rare disease community, don’t miss the this touching story of Angelina and her incredible care team.

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Resources for you

Social Wall

Trusted Resources

Find trusted information about XLH, including articles, videos, & treatment centers

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Diagnosis Educator

Information about the challenges & processes of getting and giving a diagnosis

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Additional resources

To help you as a patient or caregiver, oneXLHvoice also offers valuable tools throughout your healthcare journey.

Bookmarks

As you discover new and valuable resources on oneXLHvoice, you can easily bookmark items and, if desired, share them with doctors, caregivers, and advocates in a private, secure way.

Upcoming Events

Around the world, the X-linked hypophosphatemia community is making progress every day toward improving the lives of patients. Keep track of upcoming events of interest here.

Polls & Questionnaires

Do you know how your healthcare journey compares to others in the community? Keep your finger on the pulse of what others are experiencing through our ongoing polls and surveys.

Notifications

It takes a lot of work to keep up with what's new in the X-linked hypophosphatemia research and treatment world. Each time you visit oneXLHvoice, we'll notify you on what's new.

oneXLHvoice Working Group
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