We connect, educate, and empower the X-linked hypophosphatemia community of care. Welcome!

en English
en Englishpt Portuguesees Spanish

News from the community

June 23 is XLH Day!

Everyone can participate in building XLH awareness, and show each day that we are a global community that is stronger together.

 Login to learn more

Join the community

Register

Log in to your account

Register
Reset password

Reset password

Cancel

Resources for you

Social Wall

Trusted Resources

Find trusted information about XLH, including articles, videos, & treatment centers

Start your research

Diagnosis Educator

Information about the challenges & processes of getting and giving a diagnosis

Learn more

Additional resources

To help you as a patient or caregiver, oneXLHvoice also offers valuable tools throughout your healthcare journey.

Bookmarks

As you discover new and valuable resources on oneXLHvoice, you can easily bookmark items and, if desired, share them with doctors, caregivers, and advocates in a private, secure way.

Upcoming Events

Around the world, the X-linked hypophosphatemia community is making progress every day toward improving the lives of patients. Keep track of upcoming events of interest here.

Polls & Questionnaires

Do you know how your healthcare journey compares to others in the community? Keep your finger on the pulse of what others are experiencing through our ongoing polls and surveys.

Notifications

It takes a lot of work to keep up with what's new in the X-linked hypophosphatemia research and treatment world. Each time you visit oneXLHvoice, we'll notify you on what's new.

oneXLHvoice Working Group
Built by the community for the community
© 2021 rareLife solutions Inc.

To improve your experience on this site, we use cookies. This includes cookies essential for the basic functioning of our website, cookies for analytics purposes, and cookies enabling us to personalize site content. By clicking on 'Accept' or any content on this site, you agree that cookies can be placed. You may adjust your browser's cookie settings to suit your preferences. More Information

The cookie settings on this website are set to "allow cookies" to give you the best browsing experience possible. If you continue to use this website without changing your cookie settings or you click "Accept" below then you are consenting to this.

Close