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Weak Bones, Strong Wills: Stories of XLH
Robert lives in Trucksville, PA. He was diagnosed with XLH at 6 years old through lab work. XLH runs on his mother’s side of the family. His mother, maternal grandmother, sister, and many aunts and cousins have all been diagnosed with XLH. However, his two sons do not have XLH.
Robert wanted to share the following pain management tip: “Try to stay active and get out, out in the public. Don’t just sit home and get in that pattern, or you will fall into a depression.” Following his own advice, Robert joined a bowling league 2 years ago and has continued to not let XLH stop him. Robert also enjoys the outdoors and loves fishing, swimming, and gardening. He can even make a mean salsa!
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