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Awareness and Support for Alana With Hypophosphatemic Rickets


Mother, Natalie Sanchez, is new to the world of rare disease. At the age of two, her daughter was diagnosed with Hypophosphatemic Rickets.

Sanchez noticed that her daughter is smaller than most children at her age. At age two and a half, she is the same height and weight as Sanchez’s 11 month old son.

“They always confuse them for twins,” she says.

Alanna is constantly in pain after simple tasks like walking or lifting herself to get out of bed. She has severe bowing of the legs and takes her medications five times a day.

“She is a trooper! We are here to support her in anyway we can.”

To help bring awareness to her daughter’s condition, the Sanchez family has made their own Rare Disease Day at their oldest daughter’s school.

 

Awareness And Support For Alana With Hypophosphatemic Rickets

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