Trusted Resources: People & Places

Healthcare providers, researchers, and advocates

14 resources available :

Michael P. Whyte, MD

Endocrinologist
Washington University School of Medicine
Center for Advanced Medicine
Medicine Multispecialty Center
4921 Parkview Place
St. Louis, Missouri, United States

Michae A. Levine, MD

Pediatric Endocrinologist
The Children’s Hospital of Philadelphia
3401 Civic Center Blvd
Philadelphia, Pennsylvania, United States

Rebecca Jackson, MD

Endocrinologist
The Ohio State University Wexner Medical Center
Center for Women's Health
1800 Zollinger Road
Columbus, Ohio, United States

Carolyn Macica, PhD

Yale School of Medicine
Pharmacology
PO Box 208056
333 Cedar Street
New Haven, Connecticut, United States

Wolfgang Hogler, MD FRCPCH

Pediatric Endocrinologist
University of Birmingham
Edgbaston
B15 2TT
Birmingham, England, United Kingdom

Erik A. Imel, MD

Endocrinologist
Indiana University School of Medicine
Gatch Hall, Suite 380 F
1120 W. Michigan St.
CL 459
Indianapolis, Indiana, United States
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10 resources available :

Anthony A. Portale, MD

Pediatric Nephrologist
UCSF School of Medicine
550 16th. Street
San Francisco, California, United States

Marc D. Mckee, PhD

Biologist
McGill University
2001 McGill College Avenue
Suite 500
Montreal, Quebec, Canada

Wolfgang Hogler, MD FRCPCH

Pediatric Endocrinologist
University of Birmingham
Edgbaston
B15 2TT
Birmingham, England, United Kingdom

Erik A. Imel, MD

Endocrinologist
Indiana University School of Medicine
Gatch Hall, Suite 380 F
1120 W. Michigan St.
CL 459
Indianapolis, Indiana, United States

Maya Helene Doyle, MSW, PhD

Quinnipiac University
275 Mount Carmel Avenue
North Haven, Connecticut, United States

Peter S. N. Rowe, PhD

Nephrologist
University of Kansas Medical Center
3901 Rainbow Boulevard
Mail Stop 3018
Kansas City, Kansas, United States
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9 resources available :

Alison Skrinar, MD

Clinical Scientist
Ultragenyx Pharmaceutical Inc
60 Leveroni Court
Novato, California, United States

Wolfgang Hogler, MD FRCPCH

Pediatric Endocrinologist
University of Birmingham
Edgbaston
B15 2TT
Birmingham, England, United Kingdom

Erik A. Imel, MD

Endocrinologist
Indiana University School of Medicine
Gatch Hall, Suite 380 F
1120 W. Michigan St.
CL 459
Indianapolis, Indiana, United States

Karl L. Insogna, MD

Endocrinologist
Yale School of Medicine
PO Box 208020
333 Cedar Street
New Haven, Connecticut, United States

Maya Helene Doyle, MSW, PhD

Quinnipiac University
275 Mount Carmel Avenue
North Haven, Connecticut, United States

Suzanne Marie Jan De Beur, MD

Endocrinologist
Johns Hopkins Bayview Medical Center
5200 Eastern Avenue
Endocrinology MFL-Center Suite 4300
Baltimore, Maryland, United States
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5 resources available :

Wolfgang Hogler, MD FRCPCH

Pediatric Endocrinologist
University of Birmingham
Edgbaston
B15 2TT
Birmingham, England, United Kingdom

Erik A. Imel, MD

Endocrinologist
Indiana University School of Medicine
Gatch Hall, Suite 380 F
1120 W. Michigan St.
CL 459
Indianapolis, Indiana, United States

Karl L. Insogna, MD

Endocrinologist
Yale School of Medicine
PO Box 208020
333 Cedar Street
New Haven, Connecticut, United States

Maya Helene Doyle, MSW, PhD

Quinnipiac University
275 Mount Carmel Avenue
North Haven, Connecticut, United States

Suzanne Marie Jan De Beur, MD

Endocrinologist
Johns Hopkins Bayview Medical Center
5200 Eastern Avenue
Endocrinology MFL-Center Suite 4300
Baltimore, Maryland, United States
6 resources available :

Wolfgang Hogler, MD FRCPCH

Pediatric Endocrinologist
University of Birmingham
Edgbaston
B15 2TT
Birmingham, England, United Kingdom

Erik A. Imel, MD

Endocrinologist
Indiana University School of Medicine
Gatch Hall, Suite 380 F
1120 W. Michigan St.
CL 459
Indianapolis, Indiana, United States

Maya Helene Doyle, MSW, PhD

Quinnipiac University
275 Mount Carmel Avenue
North Haven, Connecticut, United States

Suzanne Marie Jan De Beur, MD

Endocrinologist
Johns Hopkins Bayview Medical Center
5200 Eastern Avenue
Endocrinology MFL-Center Suite 4300
Baltimore, Maryland, United States

Harald Jueppner, MD

Pediatric Nephrologist
Pediatric Nephrology Unit
Massachusetts General Hospital
55 Fruit Street
Boston, Massachusetts, United States

Farzana Perwad, MD

Pediatric Nephrologist
Division of Pediatric Nephrology
UCSF Benioff Children's Hospital
1975 4th St
San Francisco, California, United States
8 resources available:

XLH Link

Ultragenyx Pharmaceutical Inc.
60 Leveroni Court
Novato, California, United States
email   phone   website  

Associação Nacional de Displasias Ósseas (ANDO)

Av. D. Leonor Fernandes
Évora, Portugal
email   phone   website  

XLH Australia Incorporated

PO Box 79
Craigieburn, Victoria, Australia
email   phone   website  

XLH UK

21 Providence Street
Greenhithe, United Kingdom
email   phone   website  

Global Genes

28 Argonaut, Suite 150
Aliso Viejo, California, United States
email   phone   website  

National Society of Genetic Counselors

330 North Wabash Avenue
Suite 2000
Chicago, Illinois, United States
email   phone   website  
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14 resources available:

Irmandade da Santa Casa de Misericórdia de São Paulo

R. Dr. Cesário Mota Júnior
112 - Vila Buarque
São Paulo, State of São Paulo, Brazil
phone   website  

Hospital Universitário Alcides Carneiro HUAC Genética Médica – TRE (Terapia de Reposição Enzimática)

R. Carlos Chagas
s/n - São José
Campina Grande, State of Paraíba, Brazil
phone   website  

Serviço de Endocrinologia e Metabologia (SEMPR) – Hospital de Clínicas da Universidade do Paraná

Av. Agostinho Leão Junior
285, Alto da Glória
Curitiba, State of Paraná, Brazil
phone   website  

Hospital Universitário de Brasília – (HUB)

SGAN 605, Av. L2 Norte
Brasília, Brazil
email   phone   website  

Instituto Estadual de Diabetes e Endocrinologia Luiz Capriglione (IEDE)

Rua Moncorvo Filho
90, Centro
Rio de janeiro, State of Rio de Janeiro, Brazil
email   phone   website  

University of Rochester – Pediatric Bone Health Program

Golisano Children's Hospital
601 Elmwood Avenue
Box 690
Rochester, New York, United States
email   phone   website  
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